​About

​Recommendation 2 within the recent Sudlow report https://doi.org/10.5281/zenodo.13353747 highlights the need to “implement an acceptable, transparent investment strategy for health data infrastructure and models for data access cost recovery and pricing”.  The proliferation of Trusted Research Environments (TREs) and Secure Data Environments (SDEs) covering health and other sensitive data continues.  The Funding and Sustainability of this model is of major concern.

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​The UK TRE community have been working collaboratively on funding models for SDEs and TREs through its working group.  This work has collected input from a variety of existing TRE/SDEs and has now completed its goals.  To disseminate the working group’s phase 1 activities, these results will be presented and to evaluate whether a new phase of work is wanted by the community, a discussion is proposed.

​Please join us to take part and be involved.

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Agenda (Outline)

​11:30     Introduction and Welcome

​11:35     Lisa Scerri, WG co-chair, Royal Marsden BRIDgE Business Manager:  Conclusions of the working groups Phase 1 activities:   plus Q&A

​11:50     Clare Pepper, NHS Head of North West Consultancy Team :  Title TBC

​12:20     Pete Barnsley, Francis Crick Institute, WG co-chair:  Thoughts on Funding and Sustainability for a Federated DRI.

​12:35     Discussion: Q&A ending with online expression of interest

​13:00     Close

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​We look forward to engaging with you in January.