Support NF research for LJ
We are hosting a fundraiser for the Children’s Tumor Foundation. We are covering all costs of the event - any other donations will go entirely to CTF (link below). It would mean so much to us if you could join us.
The Children’s Tumor Foundation (CTF) is an incredible nonprofit that funds research to find better treatments — and one day a cure — for NF. CTF does a lot for patient advocacy and community. But one of the most amazing things is that CTF supports translational research that turns scientific discoveries into real therapies for patients. They have already helped create 2 FDA-approved therapies for one of the more extreme symptoms of NF1 - plexiform tumors.
Your support means so much to us, especially now. As of early 2025, all federal funding for NF research has been eliminated, along with funding for fighting many other rare diseases. Now more than ever, progress depends on the generosity of the community.
The fundraiser will be at The Lighthouse in South San Francisco on Saturday June 7 from 12pm to 230pm. We will provide food and beverages and activities for the kids, along with some fun items for auction. We have invited a CTF-supported UCSF investigator to attend and share an example of the important NF research your generosity helps fund.
We would welcome donation at whatever level you feel comfortable - anything is great! Our suggested ticket price per person (adults) is:
Supporter: $75 / person
Advocate: $100
Champion: $250
Please donate directly to CTF at this link.
We hope to see you there!